I have a feeling that a few people reading my blogs will be wondering why I’m not blogging about Multiple Sclerosis?
And I suppose in a way that’s a fair question to be asking, so perhaps I should try and explain.
I’m aware that there are many people talking about MS on social media. There are many people with MS and my love goes out to each and every one of you. But it’s hard for me to talk about me when I’m so well most of the time. Yes, I have my down days but they are few and far between. It’s almost as if I’m embarrassed to talk about me, because I can walk and I don’t need a walking stick, or two anymore.
No, I’m not lucky, I’ve worked hard on myself to be well. It took years of alternative healing and positive affirmations to allow me to be who I am today.
And of course that’s what my first book is all about “Different?...You Have Always Been Different”
Its my story of my struggle to become well without any help from conventional medicine. No pharmaceutical drugs of any kind have passed my lips for MS.
So for me to be shouting about how well I am now seems very unkind, when I know what a struggle life with MS can be, because I’ve been there, I’ve lived it.
So if you want to know exactly why I’m not blogging about me and my MS, please read my story and I think it will help you to understand why I feel it’s hard for me to get involved with the world of MS,
Perhaps my book will help you to get the picture.
I’m going to take an educated guess and say I’m probably the longest surviving diagnosed Multiple Sclerosis patient alive. So Please, if you’ve had MS longer than me....I would LOVE to here from you.
I’ve had MS for 54 years now.
My last MRI scan on my brain and brain stem in 2014 showed in excess of over thirty scars/lesions on my brain, some old, some new and some still active. And also over thirty lesions or scars on my brain stem. Again some active. So please.....don’t say I don’t have MS, I can assure you I DO? And I have copies of my scans to prove it.
In 1980 there were days when I walked with one stick and there were days when I walked with two and of course there were the days I couldn’t walk at all and this trying to bring up two little ones. How my husband managed to cope with me at the time, is beyond me.
He doesn’t just deserve one medal he derserves a chest full. But that’s enough about that.
I’ve written a book, I’ve written my story down, so if you would like to read it, it’s on Amazon on both the UK and the American site, and on Kindle as a down load. You can even read it for free if you have kindle unlimited. And please...if you do read it, please leave me a kind review on Amazon.
Love and blessings always.