Isabella Clarence
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When your doctor tells you you can only talk about one symptom, and you have ten!

3/11/2019

2 Comments

 
What on Earth is going on in some doctors surgeries?
​This doesn’t make any sense to me.
If I went to my doctor now with the list of my symptoms, all from me having Multiple Sclerosis, I would have to make about 15 different appointments, and I would probably still not be diagnosed with MS! As every symptom taken on its own doesn’t add up to anything in particular. But put them all together and a a very clear picture emerges.
Now I’m mentioning this because I have a patient at the moment who is showing many MS symptoms, but she’s having a nightmare trying to get the medical world to listen to her. 
Now I’m not a doctor, I’m not medical in anyway and I don’t diagnose. But when a patient, who is also a friend is in trouble, showing many of my symptoms and I know she knows what her symptoms could mean, I feel helpless.
The spiritual healing she is receiving is helping her, she leaves my home feeling a different (happy) person, but then her muddled life crowds back in on her again.
I felt so helpless last week.
A few years ago I told her about the problems I used to have when I went to a dentist. I have had one or two horrendous experiences with dentists, due to being laid back to far in a dentist chair. I have had  Laryngospasm’s in the past. A drop of water can cause this, or an intake of breath the wrong way. Unless you have experienced this yourself you will never know how fighteneing this is when it’s happening. It’s sometime called dry drowning’. So no water at the back of my throat please, or I will panic.
Anyway, she knew all about my problem.
Well, bless her. She had the same experience herself just last week. She’s now terrified to go back to the dentist and I’ve got to be honest, I don’t blame her.
Fortunatly a semiretired doctor at her surgery has organised for her to see a speech and swallowing specialist and I’m secretly hopping they will find she does indeed have a problem and then perhaps someone will allow her to have an MRI scan of her brain.
Each time she sees a different doctor and she tries to tell them about the fact she has numerous symptoms, they tell her, sorry you can only talk about one. How crazy is that. I’ve even suggested to her that she takes a hand written list of all of her symptoms, but I don’t  know if any of the doctors at the surgery would read it.
​If that had been me in 1980,  I might never have got a diagnosis, I might never have had the MRI scans and I might still think I have ‘green slime disease.’ (You need to read my first book to get that one.)
I just hope and pray that one day she will be given an MRI scan and then she might find out once and for all if she does have MS. Instead of her worry herself silly, not knowing what’s wrong.
​Blessings always to everyone.
​
2 Comments
Sarahkate in the USA
5/12/2019 04:16:06 pm

I happened upon your blog as I was trying to find information on how laryngospasm (and possibly sensory neuropathic coughing) may be linked to MS. As an aside I was misdiagnosed with "asthma" for over two decades when the problem actually was laryngospasm. Laryngospasm is so often overlooked and supposedly "rare" (NOT!!) that "spell check" lets me know I'm mistaken whenever I type it - most annoying! Doctors do not listen to patients; in my opinion they are taught in medical school to not encourage patients to wallow in their own misery so doctors end up coming across as uncaring, arrogant, dismissive, abrupt, etc. you get the picture. If you speak up and insist on being listened to you are sometimes tagged as an "uncooperative patient" which in the US where you have private insurance you can be denied insurance coverage for being "uncooperative." Can you tell I have little or no use for mainstream medicine? On the topic of managing laryngospasm - look up the "Larson maneuver" and see if that helps if you experience an episode while awake. Laryngospasm which occurs when sleeping or almost sleeping is completely disorienting so not sure the Larson maneuver would help. I have also found that really strong small peppermint tablets if one is taken right when the "tickle" starts (and a piece of peppercorn feeling is exactly what I feel) sometimes fends off the spasm. There needs to be more research on laryngospasm and other ways to help with frequent attacks than what is done in USA which is usually to prescribe some completely horrible antipsychotic drug because most doctors will tell you it's "all in your head." It is definitely not - there is nerve damage somewhere in the vocal areas that triggers these, but that information is not widely disseminated.

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Isabella Clarence link
5/12/2019 11:27:06 pm

Hi SarahKate
I’m so pleased you have found my blog page.
Please keep looking, I’m putting yet another blog out in the next couple of days about how to stop a Laryngospasm before it goes full blown.
Mine are alway during the day now and not at night.
Yes, I heard about the Larson manoeuvre years ago! As if I understood what was being said, or, I could do this when I’m panicking for my life....I don’t think so!
And as for cutting a straw in half. That means I would have to carry a straw around with me all the time tucked into my bra - or knickers.....I think not.
I do now have one or two tricks that help me and that’s going to be my next blog.
You’ve found a friend in me ....
I have MS and have had for fifty five years.
I have laryngospasms. And have had since the 1970’s.
I have asthma.(since I stopped smoking)
I have ATF
I have had a TIA (stroke) 6 years ago.
But hey....I’m doing fine.
You have the same attitude as myself, neither of us Much faith in the medical profession, that’s why I’m going to suggest to you that you read my first book, I think you will enjoy it and also get something from it.
It free on kindle unlimited, or, it’s cheaper than a packet of smokes for a kindle and not much more for a paper back copy.
If you have a look at my web page you will see a list of MS symptoms, the same list that is in the back of my book.
‘Different?...You Have Always Been Different. by Isabella Clarence from
Amazon.com in America.
I have over 70, 5 star reviews, mainly from the UK.
You have found a friend who understand you, so if you want to vent....I’m here for you.
Blessings always
Isabella

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    Wife, Mother + Grandmother, living with MS since 1964. My story of wellness is in my first book - 'Different?...You Have Always Been Different.'

    If you wish to message me privately or have an enquiry please use the email link at the top or bottom of the page. Isabella. x

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